Motor Outcomes to Validate Evaluations in FSHD (MOVE FSHD)

RecruitingOBSERVATIONAL
Enrollment

450

Participants

Timeline

Start Date

December 15, 2020

Primary Completion Date

December 31, 2027

Study Completion Date

January 31, 2028

Conditions
FSHD
Trial Locations (20)

14642

RECRUITING

University of Rochester Medical Center, Rochester

21205

RECRUITING

Kennedy Krieger Institute, Baltimore

23219

RECRUITING

Virginia Commonwealth University, Richmond

32608

RECRUITING

Univeristy of Florida Gainesville, Gainesville

43221

RECRUITING

The Ohio State University Medical Center, Columbus

52242

RECRUITING

University of Iowa, Iowa City

66160

RECRUITING

Univeristy of Kansas Medical Center, Kansas City

75390

RECRUITING

Univeristy of Texas Southwestern Medical Center, Dallas

78229

NOT_YET_RECRUITING

University of Texas Health San Antonio, San Antonio

78759

NOT_YET_RECRUITING

Austin Neuromuscular Center, Austin

80045

RECRUITING

University of Colorado Anschutz Medical Campus, Aurora

84132

RECRUITING

University of Utah, Salt Lake City

90095

RECRUITING

David Geffen School of Medicine at UCLA, Los Angeles

94306

RECRUITING

Neuromuscular Disorders Program at Stanford University School of Medicine, Stanford

98195

RECRUITING

University of Washington Medical Center, Seattle

Unknown

RECRUITING

University of Sao Paulo, São Paulo

T2N1N4

NOT_YET_RECRUITING

University of Calgary, Calgary

K1y 4e9

RECRUITING

Ottawa Hospital Research Institute, Ottawa

H3A 2B4

NOT_YET_RECRUITING

University of McGill, Montreal

S10 2JF

RECRUITING

Sheffield Teaching Hospital, Sheffield

All Listed Sponsors
collaborator

FSHD Society, Inc.

UNKNOWN

collaborator

Friends Research Institute, Inc.

OTHER

collaborator

University of Rochester

OTHER

collaborator

University of Nevada, Reno

OTHER

collaborator

FSHD Canada

UNKNOWN

collaborator

Avidity Biosciences, Inc.

INDUSTRY

collaborator

AMRA Medical

UNKNOWN

collaborator

Seattle Children's Hospital

OTHER

collaborator

Dyne Therapeutics

INDUSTRY

collaborator

Hoffmann-La Roche

INDUSTRY

collaborator

Springbok Analytics

UNKNOWN

lead

University of Kansas Medical Center

OTHER