UK SMA Patient Registry

RecruitingOBSERVATIONAL
Enrollment

800

Participants

Timeline

Start Date

July 13, 2008

Primary Completion Date

May 31, 2025

Study Completion Date

May 31, 2025

Conditions
Spinal Muscular AtrophySMA
Interventions
OTHER

Patient Registry

Participants who have volunteered to participate will complete various questionnaires relating to their conditions.

Trial Locations (1)

NE1 3BZ

RECRUITING

John Walton Muscular Dystrophy Research Centre, Newcastle upon Tyne

Sponsors

Collaborators (1)

All Listed Sponsors
collaborator

Biogen

INDUSTRY

collaborator

Roche Pharma AG

INDUSTRY

collaborator

Adult SMA REACH

UNKNOWN

collaborator

SMA REACH UK

UNKNOWN

lead

Newcastle University

OTHER