NCT04064307View on ClinicalTrials.gov

Myotubular and Centronuclear Myopathy Patient Registry

RecruitingOBSERVATIONAL
Enrollment

500

Participants

Timeline

Start Date

March 26, 2013

Primary Completion Date

May 31, 2025

Study Completion Date

May 31, 2025

Conditions
Myotubular MyopathyMyotubular Myopathy 1Myotubular (Centronuclear) MyopathyCentronuclear MyopathyCentronuclear Myopathy, X-LinkedX-linked Myotubular Myopathy
Trial Locations (1)

NE1 3BZ

RECRUITING

Newcastle University, Newcastle upon Tyne

Sponsors
All Listed Sponsors
collaborator

Myotubular Trust

UNKNOWN

collaborator

Muscular Dystrophy UK

UNKNOWN

collaborator

Astellas Gene Therapies

INDUSTRY

collaborator

Astellas Pharma Inc

INDUSTRY

lead

Newcastle-upon-Tyne Hospitals NHS Trust

OTHER

NCT04064307 - Myotubular and Centronuclear Myopathy Patient Registry | Biotech Hunter | Biotech Hunter