36
Participants
Start Date
October 20, 2025
Primary Completion Date
October 20, 2026
Study Completion Date
October 20, 2026
focus group discussions
"These sessions will address:~* emotional reactions to the disclosure of the result~* perceptions and representations of the disease and its treatment~* the impact on the parent-child relationship~* the lived experience of neonatal screening and the perception of the support provided"
Interview with the psychologist
"These sessions will address:~* emotional reactions to the disclosure of the result~* perceptions and representations of the disease and its treatment~* the impact on the parent-child relationship~* the lived experience of neonatal screening and the perception of the support provided"
University Hospital, Strasbourg, France
OTHER