Retinal Detachment Prevention (Prophylaxis) in Stickler Syndrome (SS)

NANot yet recruitingINTERVENTIONAL
Enrollment

500

Participants

Timeline

Start Date

September 30, 2025

Primary Completion Date

December 31, 2035

Study Completion Date

December 31, 2035

Conditions
Stickler Syndrome Type 1Stickler Syndrome Type 2
Interventions
PROCEDURE

Prophylactic (non-invasive) Laser Retinopexy

Prophylactic laser retinopexy to prevent RD in participants with SS using the indirect ophthalmoscopy (IDO) to place approximately 1800 to 2400 moderate intensity burns to produce encircling grid pattern, placed one burn width apart from 2 MM anterior to the ora serrata, extending to and between the vortex vein ampullae.

All Listed Sponsors
collaborator

Five Lakes Clinical Research Consulting, LLC

UNKNOWN

lead

Helen Keller Eye Research Foundation

OTHER

NCT07146516 - Retinal Detachment Prevention (Prophylaxis) in Stickler Syndrome (SS) | Biotech Hunter | Biotech Hunter