Improving Communication Between AYA Oncology Patients and Clinicians: A Patient-Centered Intervention

NARecruitingINTERVENTIONAL
Enrollment

60

Participants

Timeline

Start Date

February 10, 2025

Primary Completion Date

March 15, 2029

Study Completion Date

June 29, 2029

Conditions
Pediatric CancerAdolescent and Young Adult Cancer
Interventions
BEHAVIORAL

ReSPECT

ReSPECT is an interactive, web-based digital platform that integrates (1) an AYA-centered pre-visit questionnaire (PVQ) that will discretely alert clinicians to relevant SRH questions/concerns, (2) targeted patient education on PVQ selections, and (3) clinician-centered guidance for addressing SRH issues. At enrollment, all participants will complete a baseline survey (T1). AYAs will have access to the ReSPECT digital platform and will receive the first prompt to complete the PVQ 3-5 days before their next clinic appointment. Once completed, AYAs will receive an email/text with a link to tailored information based on their PVQ selections for review. Clinicians will receive an email with a link to the patient's PVQ results on the ReSPECT platform along with clinical management recommendations. All participants will complete a brief virtual survey (T2) and interview within 48 hours of the first postintervention clinic visit and a follow-up survey 2 months after study enrollment (T3).

Trial Locations (1)

06106

RECRUITING

Connecticut Children's Medical Center, Hartford

All Listed Sponsors
collaborator

National Cancer Institute (NCI)

NIH

lead

Connecticut Children's Medical Center

OTHER