NCT06907953View on ClinicalTrials.gov

CZI Rare As One: Co-designing an App and Wearable Based Compass for Rare Diseases

CompletedOBSERVATIONAL
Enrollment

239

Participants

Timeline

Start Date

February 6, 2025

Primary Completion Date

July 1, 2025

Study Completion Date

July 1, 2025

Conditions
Pancreatitis, ChronicSarcoidosisVCP DiseaseLong COVIDPCDSymptoms and SignsWearables
Interventions
OTHER

Observational - no intervention

Pilot, observational study - no intervention

Trial Locations (1)

11021-3326

4YouandMe, New York

All Listed Sponsors
collaborator

Patient Led Research Collaborative (PLRC)

UNKNOWN

collaborator

Mission: Cure

OTHER

collaborator

Cure VCP Disease

UNKNOWN

collaborator

Foundation for Sarcoidosis Research (FSR)

UNKNOWN

collaborator

Primary Ciliary Disease Foundation (PCD)

UNKNOWN

lead

4YouandMe

OTHER