360
Participants
Start Date
September 20, 2025
Primary Completion Date
March 31, 2029
Study Completion Date
March 31, 2029
MyChildCMC app (an app designed to facilitate home monitoring of CMC's health status)
MyChildCMC is an app designed to support remote monitoring of CMC crosscutting symptoms to identify signs of CMC's health deterioration early to change their care early to avoid progression and prevent ED/hospital admissions. The app includes the following features: 1) automated reminders, 2) vital sign/symptom monitoring, 3) real-time feedback system, 4) automated and real-time summary reports with longitudinal graphs, 5) automated alerts to a care coordinator, and 6) clinic dashboard connecting patients to clinics and allowing access to patient data to support care coordination.
Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago
Primary Children's Hospital, Salt Lake City
National Institute of Nursing Research (NINR)
NIH
University of Utah
OTHER