ERN-EuroBloodNet Registry on Patients With Rare Red Blood Cell Defects and COVID-19

CompletedOBSERVATIONAL
Enrollment

684

Participants

Timeline

Start Date

April 15, 2020

Primary Completion Date

June 30, 2023

Study Completion Date

December 31, 2023

Conditions
HemoglobinopathiesSickle Cell DiseaseSickle Cell AnemiaSickle Beta ThalassemiaSickle-Cell; HemoglobinopathySickle Cell Hemoglobin CSickle Cell Hemoglobin DSickle Cell-Hemoglobin E DiseaseBeta-ThalassemiaBeta Thalassemia MajorBeta Thalassemia IntermediaDominant Beta-ThalassemiaHereditary Persistence of Fetal Hemoglobin ThalassemiaDelta-Beta ThalassaemiaHaemoglobin C-Beta-Thalassaemia SyndromeHemoglobin E-Beta ThalassemiaAlpha-ThalassemiaHemoglobin H DiseaseHemoglobin Barts HydropsEnzyme Disorder; AnemiaMembranes; DisorderElliptocytosis, HereditaryStomatocytosisSpherocytosis, Hereditary
Interventions
OTHER

Non applicable, is a patient registry

Non applicable, is a patient registry

Trial Locations (1)

08035

Vall d'Hebron Institut de Recerca, Barcelona

All Listed Sponsors
collaborator

European Georges Pompidou Hospital

OTHER

collaborator

Hospital General Universitario Gregorio Marañon

OTHER

collaborator

Hospital Vall d'Hebron

OTHER

collaborator

Unidade Local de Saúde de Coimbra, EPE

OTHER

collaborator

University Hospital Freiburg

OTHER

collaborator

Azienda Ospedaliera di Padova

OTHER

collaborator

Hôpital Necker-Enfants Malades

OTHER

collaborator

Guy's and St Thomas' NHS Foundation Trust

OTHER

collaborator

Erasme University Hospital

OTHER

collaborator

Aghia Sophia Children's Hospital of Athens

OTHER

collaborator

Cyprus Institute of Neurology and Genetics

OTHER

collaborator

University Hospital Heidelberg

OTHER

collaborator

Children's Health Ireland

OTHER_GOV

collaborator

San Luigi Gonzaga Hospital

OTHER

collaborator

Oxford University Hospitals NHS Trust

OTHER

collaborator

UMC Utrecht

OTHER

collaborator

General Hospital of Athens Elpis

OTHER

collaborator

Amsterdam UMC

OTHER

collaborator

Brno University Hospital

OTHER

collaborator

Azienda Ospedaliera Ospedali Riuniti Villa Sofia Cervello

OTHER

collaborator

University Hospital, Gentofte, Copenhagen

OTHER

collaborator

Institute of Hematology and Blood Transfusion, Czech Republic

OTHER

collaborator

Universitaire Ziekenhuizen KU Leuven

OTHER

collaborator

Palacky University

OTHER

lead

Hospital Universitari Vall d'Hebron Research Institute

OTHER

NCT06831799 - ERN-EuroBloodNet Registry on Patients With Rare Red Blood Cell Defects and COVID-19 | Biotech Hunter | Biotech Hunter