NCT06774703View on ClinicalTrials.gov

Nemaline Myopathy Clinical Research Network (NM-CTRN)

Not yet recruitingOBSERVATIONAL
Enrollment

50

Participants

Timeline

Start Date

January 31, 2025

Primary Completion Date

December 31, 2029

Study Completion Date

December 31, 2029

Conditions
Nemaline Myopathy
Trial Locations (6)

20892

National Institute of Health, Bethesda

38105

St Jude Children's Research Hospital, Memphis

75207

UT Southwestern Medical Centre/Children's Health Dallas, Dallas

94304

Stanford University/Lucile Packard Children's Hospital, Palo Alto

02115

Boston Children's Hospital, Boston

M5G 1E8

The Hospital for Sick Children, Toronto

All Listed Sponsors
collaborator

A Foundation Building Strength

OTHER

lead

Stanford University

OTHER

NCT06774703 - Nemaline Myopathy Clinical Research Network (NM-CTRN) | Biotech Hunter | Biotech Hunter