Personalized Training for People With Rare Neuromuscular Disorders

NARecruitingINTERVENTIONAL
Enrollment

120

Participants

Timeline

Start Date

December 13, 2024

Primary Completion Date

December 31, 2026

Study Completion Date

December 31, 2028

Conditions
Neuromuscular Diseases (NMD)Charcot Marie Tooth Disease (CMT)Facioscapulohumeral Muscular DystrophyMyotonic Dystrophy Type 1 (DM1)
Interventions
OTHER

Exercise

The intervention includes 12-day personalized exercise program set in a rehabilitation center, followed by a three-month digital intervention and then a second 12-day personalized exercise program in a rehabilitation center.

OTHER

Usual Care

Usual care includes appointments at hospitals and in the community health system according to what has been recommended to that individual

Trial Locations (5)

5021

NOT_YET_RECRUITING

Haukeland University Hospital, Bergen

7803

NOT_YET_RECRUITING

Namsos Hospital, Namsos

9038

RECRUITING

University Hospital of North Norway, Tromsø

Unknown

NOT_YET_RECRUITING

Helse Møre and Romsdal HF (Molde Hospital), Molde

0424

RECRUITING

Oslo University Hospital, Oslo

All Listed Sponsors
collaborator

Universitetssykehuset i Nord-Norge HF

UNKNOWN

collaborator

Norwegian School of Sport Sciences

OTHER

collaborator

Namsos Hospital

OTHER

collaborator

Frambu Centre for Rare Disorders

UNKNOWN

collaborator

Vigør Rehabilitation Hospital

UNKNOWN

collaborator

Kastvollen Rehabilitation Centre

UNKNOWN

collaborator

Norwegian University of Science and Technology

OTHER

collaborator

Haukeland University Hospital

OTHER

collaborator

Molde Hospital

OTHER

collaborator

Drammen sykehus

OTHER

collaborator

Vikersund Bad Rehabiliteringssenter AS

UNKNOWN

collaborator

Røde Kors Haugland rehabilitation center

OTHER

lead

Oslo University Hospital

OTHER

NCT06708468 - Personalized Training for People With Rare Neuromuscular Disorders | Biotech Hunter | Biotech Hunter