Natural History Study for Patients With Nemaline Myopathy in the UK

RecruitingOBSERVATIONAL
Enrollment

45

Participants

Timeline

Start Date

October 7, 2024

Primary Completion Date

August 31, 2029

Study Completion Date

August 31, 2029

Conditions
Nemaline Myopathy
Trial Locations (4)

Unknown

NOT_YET_RECRUITING

Department of Paediatric Neurology - Neuromuscular Service, Evelina Children's Hospital, London

NOT_YET_RECRUITING

Dubowitz Neuromuscular Centre, UCL Great Ormond Street Hospital, London

RECRUITING

John Walton Muscular Dystrophy Research Centre, Newcastle University, Newcastle

RECRUITING

MDUK Oxford Neuromuscular Centre, University of Oxford, Oxford

All Listed Sponsors
collaborator

Muscular Dystrophy UK

UNKNOWN

lead

University of Oxford

OTHER