60
Participants
Start Date
November 15, 2024
Primary Completion Date
September 30, 2025
Study Completion Date
December 31, 2025
MDR diet assessment
Participants will record their dietary intake on the MyRareDiet (MRD) app and nutrient content will be assessed to validate MRD compared to a traditional interviewer assessed 24 hour recall.
24 hour recall
A trained nutritionist will conduct a telephone multi-pass 24 hour diet recall on 3 randomized nonconsecutive days. The dietary intake will be analyzed using NDSR and metabolic pro and nutrient intake will be compared to the nutrient intake assessed with the MRD app.
BrightOutcome
INDUSTRY
National Urea Cycle Disorder Foundation
UNKNOWN
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
NIH
Oregon Health and Science University
OTHER