MyRareDiet A Novel Diet Tracking Tool

NANot yet recruitingINTERVENTIONAL
Enrollment

60

Participants

Timeline

Start Date

November 15, 2024

Primary Completion Date

September 30, 2025

Study Completion Date

December 31, 2025

Conditions
Urea Cycle DisorderPropionic AciduriaMaple Syrup Urine DiseaseMethylmalonic Acidemia
Interventions
OTHER

MDR diet assessment

Participants will record their dietary intake on the MyRareDiet (MRD) app and nutrient content will be assessed to validate MRD compared to a traditional interviewer assessed 24 hour recall.

OTHER

24 hour recall

A trained nutritionist will conduct a telephone multi-pass 24 hour diet recall on 3 randomized nonconsecutive days. The dietary intake will be analyzed using NDSR and metabolic pro and nutrient intake will be compared to the nutrient intake assessed with the MRD app.

All Listed Sponsors
collaborator

BrightOutcome

INDUSTRY

collaborator

National Urea Cycle Disorder Foundation

UNKNOWN

collaborator

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

NIH

lead

Oregon Health and Science University

OTHER

NCT06664840 - MyRareDiet A Novel Diet Tracking Tool | Biotech Hunter | Biotech Hunter