Implementing Dynamic Consent for Rare Disease Patients

Not yet recruitingOBSERVATIONAL
Enrollment

50

Participants

Timeline

Start Date

September 30, 2025

Primary Completion Date

July 31, 2026

Study Completion Date

August 31, 2026

Conditions
Rare Disorders
Interventions
OTHER

Online consenting

The design and establishment of an innovative digital tool (a software application) to implement the dynamic consent and allowing interaction among healthcare professionals and patients

All Listed Sponsors
collaborator

Azienda Ospedaliera Ospedali Riuniti Villa Sofia Cervello

OTHER

lead

Istituto Ortopedico Rizzoli

OTHER

NCT06656247 - Implementing Dynamic Consent for Rare Disease Patients | Biotech Hunter | Biotech Hunter