150
Participants
Start Date
December 1, 2023
Primary Completion Date
June 1, 2025
Study Completion Date
June 1, 2026
Jeroen Pit Huis
The JPH is a unique and innovative Transitional Care Unit (TCU) situated in close proximity of the AUMC. In this TCU, patients and their family reside in separate private home-like apartments. The families can stay while practising in, and adapting to, their new reality until they are ready to transition home. A multidisciplinary team of healthcare experts (nurses, psychosocial care workers, family counsellors, and paediatricians) are gradually guiding parents towards taking on the role of their child's primary caregiver. This process is guided by a newly developed seven phase care path.One condition for staying in the JPH is that one parent is always present. In this form (24/7 parental stay and nursing care directly available under the supervision of pediatricians) the JPH is unique in the Netherlands.
RECRUITING
Amsterdam University Medical Centre, Amsterdam
Collaborators (1)
ZonMw: The Netherlands Organisation for Health Research and Development
OTHER
Erasmus Medical Center
OTHER
Stichting Katholieke Universiteit- Radboudumc (RUMC), Netherlands
UNKNOWN
University Medical Center Groningen
OTHER
UMC Utrecht
OTHER
Academisch Medisch Centrum - Universiteit van Amsterdam (AMC-UvA)
OTHER