Bridging Hospital to Home for Children with Medical Complexity and Their Families

RecruitingOBSERVATIONAL
Enrollment

150

Participants

Timeline

Start Date

December 1, 2023

Primary Completion Date

June 1, 2025

Study Completion Date

June 1, 2026

Conditions
Children with Medical Complexity
Interventions
OTHER

Jeroen Pit Huis

The JPH is a unique and innovative Transitional Care Unit (TCU) situated in close proximity of the AUMC. In this TCU, patients and their family reside in separate private home-like apartments. The families can stay while practising in, and adapting to, their new reality until they are ready to transition home. A multidisciplinary team of healthcare experts (nurses, psychosocial care workers, family counsellors, and paediatricians) are gradually guiding parents towards taking on the role of their child's primary caregiver. This process is guided by a newly developed seven phase care path.One condition for staying in the JPH is that one parent is always present. In this form (24/7 parental stay and nursing care directly available under the supervision of pediatricians) the JPH is unique in the Netherlands.

Trial Locations (1)

Unknown

RECRUITING

Amsterdam University Medical Centre, Amsterdam

Sponsors

Collaborators (1)

All Listed Sponsors
collaborator

ZonMw: The Netherlands Organisation for Health Research and Development

OTHER

collaborator

Erasmus Medical Center

OTHER

collaborator

Stichting Katholieke Universiteit- Radboudumc (RUMC), Netherlands

UNKNOWN

collaborator

University Medical Center Groningen

OTHER

collaborator

UMC Utrecht

OTHER

lead

Academisch Medisch Centrum - Universiteit van Amsterdam (AMC-UvA)

OTHER