Genetic Newborn Screening for Rare Diseases Within the Screen4Care Project

NARecruitingINTERVENTIONAL
Enrollment

20,000

Participants

Timeline

Start Date

December 3, 2024

Primary Completion Date

December 31, 2025

Study Completion Date

December 31, 2025

Conditions
Newborn Screening
Interventions
DIAGNOSTIC_TEST

newborn genetic screening and whole genome sequencing

newborn genetic screening (panel of treatable diseases); whole genome sequencing (if newborn develops symptoms suggestive of a genetic disease)

Trial Locations (6)

21079

RECRUITING

Centre de Génétique et Centre de Référence Anomalies du Développement et Syndromes Malformatifs, Hôpital d'Enfants, Dijon

41100

RECRUITING

Azienda Ospedaliero Universitaria di Modena, Neonatology Unit, Modena

44122

RECRUITING

Unit Medical Genetics, Azienda Ospedaliero-Universitaria Sant'Anna, Ferrara

79106

RECRUITING

Clinic for Neuropediatrics and Muscular Diseases, Freiburg University Medical Center, Freiburg im Breisgau

00165

RECRUITING

Ospedale Pediatrivo Bambino Gesu IRCCS, Rome

00189

RECRUITING

San Pietro Fatebenefratelli Hospital, Roma

Sponsors

Collaborators (1)

All Listed Sponsors
collaborator

Innovative Medicines Initiative

OTHER

collaborator

Università degli Studi di Ferrara

OTHER

collaborator

Ospedale Pediatrico Bambin Gesù

OTHER

collaborator

University of Siena

OTHER

collaborator

Centre Hospitalier Universitaire Dijon

OTHER

collaborator

Real Genix

UNKNOWN

collaborator

University Hospital Goettingen

OTHER

collaborator

Centro Nacional de Análisis Genómico

UNKNOWN

collaborator

Genoox

UNKNOWN

collaborator

Schwarzwald-Baar Clinic

UNKNOWN

collaborator

Municipal Hospital Karlsruhe

UNKNOWN

lead

University Hospital Freiburg

OTHER

NCT06549218 - Genetic Newborn Screening for Rare Diseases Within the Screen4Care Project | Biotech Hunter | Biotech Hunter