NCT06526741View on ClinicalTrials.gov

ASF Alport Patient Registry

RecruitingOBSERVATIONAL
Enrollment

2,500

Participants

Timeline

Start Date

August 24, 2023

Primary Completion Date

August 23, 2048

Study Completion Date

August 23, 2048

Conditions
Alport SyndromeThin Basement Membrane DiseaseHereditary Nephritis
Interventions
OTHER

Longitudinal data collection

This is an observational ambispective non-interventional registry collecting longitudinal real-world data only. There is no intervention.

Trial Locations (1)

85261

RECRUITING

On-line only: https://asfalportpatientregistry.healthie.net, Scottsdale

All Listed Sponsors
collaborator

Pulse Infoframe Inc

INDUSTRY

lead

Alport Syndrome Foundation

OTHER