The Electronic Cardiovascular Genetics (eCG) Clinic for Presymptomatic Genetic Counselling

NARecruitingINTERVENTIONAL
Enrollment

170

Participants

Timeline

Start Date

November 15, 2023

Primary Completion Date

December 1, 2026

Study Completion Date

December 1, 2026

Conditions
Inherited Cardiac Disease
Interventions
BEHAVIORAL

eCG Family Clinic

The DNA-poli is an online tool which is designed as an addition to the current genetic counseling method to make the process more efficient and to increase the uptake without compromising counseling quality. Probands can invite their at-risk family members by entering their email addresses. The family members are invited to the DNA-poli via which they can get all the information needed to make a well-considered decision about genetic testing. The information is provided in different formats, for example via a virtual assistant and via videos, which they can evaluate at their own pace, and which can be reread or rewatched. Afterwards they can request an appointment with a health care professional and make a definite decision about genetic testing.

Trial Locations (1)

3584 CX

RECRUITING

University Medical Centre Utrecht, Utrecht

All Listed Sponsors
collaborator

Amsterdam UMC

OTHER

collaborator

University Medical Center Groningen

OTHER

collaborator

Radboud University Medical Center

OTHER

lead

UMC Utrecht

OTHER

NCT06431425 - The Electronic Cardiovascular Genetics (eCG) Clinic for Presymptomatic Genetic Counselling | Biotech Hunter | Biotech Hunter