DeciPHer-ILD: A Real-world Patient Registry in Group 3 Pulmonary Hypertension Associated With Interstitial Lung Disease (PH-ILD)

RecruitingOBSERVATIONAL
Enrollment

1,000

Participants

Timeline

Start Date

January 23, 2025

Primary Completion Date

September 1, 2030

Study Completion Date

November 30, 2030

Conditions
Pulmonary Hypertension Due to Lung Diseases and HypoxiaPulmonary HypertensionInterstitial Lung Disease
Interventions
OTHER

Prospective study assessments

Patients will complete prospective assessments at 6- and 12-month intervals for up to 5 years. There will be 1 check in at the first 3 months of enrollment. Follow up visits will include a ±45 day visit window. If an assessment is performed within 45 days of the visit window as part of the patient's standard of care, those values will be used in place of a prospective assessment.

Trial Locations (34)

10016

RECRUITING

New York University Langone Medical Center, New York

11042

RECRUITING

Northwell Health, New Hyde Park

19107

RECRUITING

Thomas Jefferson University - Sidney Kimmel Medical College, Philadelphia

19140

RECRUITING

Temple Lung Center, Philadelphia

RECRUITING

Temple University Hospital, Philadelphia

21201

RECRUITING

University of Maryland Medical Center, Baltimore

23230

RECRUITING

Pulmonary Associates of Richmond, Inc., Richmond

25701

RECRUITING

Marshall Health, Huntington

27403

RECRUITING

Pulmonix, LLC, Greensboro

27834

RECRUITING

East Carolina University Health, Greenville

29621

RECRUITING

AnMed Health, Anderson

33606

RECRUITING

Tampa General Hospital/University of South Florida Health, Tampa

34102

RECRUITING

NCH Research Institute, Naples

34239

RECRUITING

Intercoastal Medical Group, Sarasota

35294

RECRUITING

University of Alabama at Birmingham, Birmingham

37909

RECRUITING

StatCare Pulmonary Consultants and Center for Biomedical Research, Knoxville

40202

RECRUITING

Norton Pulmonary Specialists, Louisville

43210

RECRUITING

Ohio State Richard M. Ross Heart Hospital, Columbus

45219

RECRUITING

University of Cincinnati Medical Center, Cincinnati

46260

RECRUITING

Ascension St. Vincent, Indianapolis

53215

RECRUITING

Aurora St. Luke's Medical Center, Milwaukee

66160

RECRUITING

University of Kansas Medical Center, Kansas City

70112

RECRUITING

University Medical Center - New Orleans, New Orleans

74104

RECRUITING

Oklahoma Heart Institute, Tulsa

75246

RECRUITING

Baylor University Medical Center, Dallas

77030

RECRUITING

Houston Methodist, Houston

80045

RECRUITING

University of Colorado - Anschutz Medical Campus, Aurora

84157

RECRUITING

Intermountain Medical Center, Murray

87131

RECRUITING

University of New Mexico Health Sciences Center, Albuquerque

97210

RECRUITING

Legacy Research Institute, Portland

97239

RECRUITING

Oregon Health & Science University, Portland

97701

RECRUITING

Summit Health, Bend

27610-1231

RECRUITING

Wakemed Health and Hospital, Raleigh

00968

RECRUITING

Auxilio Mutuo Hospital, Guaynabo

Sponsors
All Listed Sponsors
lead

United Therapeutics

INDUSTRY