The Diagnostic Experience of Male Rett Syndrome

RecruitingOBSERVATIONAL
Enrollment

80

Participants

Timeline

Start Date

May 24, 2023

Primary Completion Date

April 30, 2024

Study Completion Date

April 30, 2024

Conditions
Rett SyndromeRTT
Interventions
GENETIC

Male Rett

This study does not have an intervention. Participants of this study must be parents or caregivers to boys with Rett syndrome.

Trial Locations (1)

80045

RECRUITING

University of Colorado Anschutz Medical Campus, Aurora

All Listed Sponsors
collaborator

University of Colorado, Denver

OTHER

collaborator

Vanderbilt University School of Medicine

OTHER

collaborator

University of Alabama at Birmingham

OTHER

collaborator

University of Pennsylvania

OTHER

collaborator

International Rett Syndrome Foundation

OTHER

collaborator

Rocky Mountain Rett Association

UNKNOWN

lead

Children's Hospital Colorado

OTHER