The Struggle That Is Phenylketonuria : What Do The Patients and Caregivers Suffer From

CompletedOBSERVATIONAL
Enrollment

156

Participants

Timeline

Start Date

May 27, 2020

Primary Completion Date

September 1, 2020

Study Completion Date

September 1, 2020

Conditions
Psychological Well-BeingCaregiver BurdenLife Stress
Interventions
OTHER

parenting stress index, Zarit burden scale, Rosenberg self esteem scale, stait trait anxiety inventory, struggles and difficulties questionnaire

Scales and questionnaires

Trial Locations (1)

06100

Hacettepe University, Ankara

All Listed Sponsors
lead

Hacettepe University

OTHER

NCT06280261 - The Struggle That Is Phenylketonuria : What Do The Patients and Caregivers Suffer From | Biotech Hunter | Biotech Hunter