Epilepsy Learning Healthcare System (ELHS)

RecruitingOBSERVATIONAL
Enrollment

100,000

Participants

Timeline

Start Date

March 20, 2019

Primary Completion Date

February 14, 2099

Study Completion Date

February 14, 2099

Conditions
EpilepsySeizure DisorderNeurologic DisorderRare Diseases
Interventions
OTHER

Clinical care and quality improvement

All eligible patients at each center will be included in the registry for clinical care, quality improvement and other activities that do not meet the regulatory requirements of human subjects research. Use of data for these purposes is not considered to be a human subjects research activity and will be covered under a Business Associates Agreement and a Participation and Data Use Agreement.

Trial Locations (13)

17033

RECRUITING

Penn State Hershey, Hershey

19104

RECRUITING

Children's Hospital of Philadelphia (CHOP), Philadelphia

20716

RECRUITING

Epilepsy Foundation, Bowie

44308

NOT_YET_RECRUITING

Akron Children's Hospital, Akron

45229

NOT_YET_RECRUITING

Cincinnati Children's Hospital Comprehensive Epilepsy Center (CCHMC), Cincinnati

45267

RECRUITING

University of Cincinnati Gardner Neuroscience Institute Epilepsy Center, Cincinnati

75063

RECRUITING

UT Southwestern Children's Dallas, Dallas

80045

RECRUITING

UC Health University of Colorado Anshutz, Aurora

85013

RECRUITING

Barrow Neurological Institute Comprehensive Epilepsy Center, Phoenix

90027

NOT_YET_RECRUITING

Children's Hospital Los Angeles, Los Angeles

90032

RECRUITING

University of Southern California, Los Angeles

02114

RECRUITING

Partners - Massachusetts General Hospital Epilepsy Service (MGH)/ Partners - Brigham and Women's (BWH), Boston

02115

RECRUITING

Brigham & Women's Hospital, Boston

All Listed Sponsors
lead

Epilepsy Foundation of America

OTHER