Exploring Patient Reported Outcomes in Inherited Ichthyosis

RecruitingOBSERVATIONAL
Enrollment

20

Participants

Timeline

Start Date

September 1, 2023

Primary Completion Date

October 1, 2024

Study Completion Date

December 1, 2024

Conditions
Congenital Ichthyosis
Interventions
OTHER

Questionnaires with patient reported outcome measures

Questionnaires to gain insight of the prevalence of extracutaneous manifestations and the impact of the disease on the quality of life.

Trial Locations (1)

6229HX

RECRUITING

Maastricht University Medical Centre +, Maastricht

All Listed Sponsors
lead

Maastricht University Medical Center

OTHER