A Randomised Clinical Trial of a Digital Self-management Package for People With Interstitial Lung Disease

NARecruitingINTERVENTIONAL
Enrollment

400

Participants

Timeline

Start Date

June 3, 2024

Primary Completion Date

June 30, 2027

Study Completion Date

August 31, 2027

Conditions
Lung Diseases, InterstitialPulmonary Fibrosis
Interventions
BEHAVIORAL

Pulmonary Fibrosis self-management package and smartphone application

"The pulmonary fibrosis package includes modules on understanding treatment options for pulmonary fibrosis, managing medication and side effects, understanding and accessing clinical trials, managing shortness of breath, managing fatigue and mood, managing co-existing conditions, the role and importance of pulmonary rehabilitation and regular physical activity, role of oxygen therapy, smoking cessation advice and support, accessing community support, and communicating with others when living with pulmonary fibrosis.~The RE-BUILD app is used as a tool for data collection and to help participants self-monitor their disease over time. Participants enter their health data, including baseline conditions, medications and diagnosis, pulmonary function results and supplementary oxygen use. It also tracks air quality data close to the participant as well as physical activity level (step count). The app also has links to ILD-related educational resources."

Trial Locations (4)

2050

RECRUITING

Royal Prince Alfred Hospital, Sydney

3004

RECRUITING

Alfred Hospital, Melbourne

3084

RECRUITING

Austin Health, Melbourne

4032

RECRUITING

The Prince Charles Hospital, Brisbane

All Listed Sponsors
collaborator

Monash University

OTHER

collaborator

Lung Foundation Australia

UNKNOWN

collaborator

University of Tasmania

OTHER

lead

University of Sydney

OTHER