400
Participants
Start Date
June 3, 2024
Primary Completion Date
June 30, 2027
Study Completion Date
August 31, 2027
Pulmonary Fibrosis self-management package and smartphone application
"The pulmonary fibrosis package includes modules on understanding treatment options for pulmonary fibrosis, managing medication and side effects, understanding and accessing clinical trials, managing shortness of breath, managing fatigue and mood, managing co-existing conditions, the role and importance of pulmonary rehabilitation and regular physical activity, role of oxygen therapy, smoking cessation advice and support, accessing community support, and communicating with others when living with pulmonary fibrosis.~The RE-BUILD app is used as a tool for data collection and to help participants self-monitor their disease over time. Participants enter their health data, including baseline conditions, medications and diagnosis, pulmonary function results and supplementary oxygen use. It also tracks air quality data close to the participant as well as physical activity level (step count). The app also has links to ILD-related educational resources."
RECRUITING
Royal Prince Alfred Hospital, Sydney
RECRUITING
Alfred Hospital, Melbourne
RECRUITING
Austin Health, Melbourne
RECRUITING
The Prince Charles Hospital, Brisbane
Monash University
OTHER
Lung Foundation Australia
UNKNOWN
University of Tasmania
OTHER
University of Sydney
OTHER