1,585
Participants
Start Date
September 1, 2022
Primary Completion Date
June 1, 2023
Study Completion Date
June 1, 2023
Questionnaire
Online self-administered questionnaire to quantitatively mesure parental knowledge and expectations on current and expanded newborn screeing and parental acceptability of expanded newborn screening using genetic.
Interview
Semi-structured interview to explore parental representations on the extension of newborn screening and - if concerned - to retrace the screening/diagnosis/care management pathway
Chu Dijon Bourgogne, Dijon
Groupe Hospitalier de La Haute-Saône, Vesoul
Hôpital Necker - Enfants Malades, Paris
Hopital Antoine Beclere - Aphp, Clamart
Centre Hospitalier Universitaire Dijon
OTHER