Development of Health-related Quality of Life Instrument for Patients With Cystinosis

RecruitingOBSERVATIONAL

Enrollment

300

Participants

Timeline

Start Date

May 1, 2022

Primary Completion Date

May 31, 2025

Study Completion Date

May 31, 2025

Conditions

Cystinosis

Trial Locations (1)

RECRUITING

"University Medical Center Hamburg-Eppendorf , Center for Psychosocial Medicine

All Listed Sponsors

collaborator

Cystinosis Research Network

UNKNOWN

collaborator

Leben eben! Cystinose-Selbsthilfe e.V.

UNKNOWN

lead

Cystinose Stiftung

OTHER