Global Patient Registry of Inherited Retinal Diseases

Active, not recruitingOBSERVATIONAL
Enrollment

894

Participants

Timeline

Start Date

August 31, 2023

Primary Completion Date

July 3, 2026

Study Completion Date

July 3, 2026

Conditions
Inherited Retinal Diseases
Interventions
OTHER

Standard of Care

Participants will not receive any intervention in this study. Participants will receive standard of care therapy.

Trial Locations (75)

1004

Universite de Lausanne, Hopital ophtalmique Jules-Gonin, Lausanne

2145

Sydney Children's Hospital, Westmead

2600

Rigshospitalet Glostrup, Glostrup Municipality

3002

Centre for Eye Research Australia, East Melbourne

4021

Kepler Universitatsklinikum GmbH, Linz

4031

University Hospital Basel, Eye Clinic/Institute of Molecular and Clinical, Basel

6009

Lions Eye Institute, Nedlands

9000

Ghent University Hospital, Ghent

13620

Seoul National University Bundang Hospital, Gyeonggi-do

14642

University of Rochester Medical Center, Rochester

15213

UPMC, Pittsburgh

20014

Hosp. Univ. Donostia, Donostia / San Sebastian

20132

Ospedale San Raffaele, Milan

20142

ASST Santi Paolo e Carlo, Milan

28040

Hosp Univ Fund Jimenez Diaz, Madrid

28041

Hosp. Univ. 12 de Octubre, Madrid

30322

Emory University, Atlanta

33136

Bascom Palmer Eye Institute, Miami

34295

CHU Montpellier, Montpellier

35294

University of Alabama Birmingham, Birmingham

41009

Hosp. Virgen Macarena, Seville

44124

Arcispedale S. Anna Ferrara, Ferrara

44195

Cleveland Clinic, Cleveland

48105

Univ of Michigan Medical Center, Ann Arbor

50134

Azienda Ospedaliero Universitaria Careggi, Florence

52242

University of Iowa, Iowa City

52621

The Chaim Sheba Medical Center, Ramat Gan

53127

Universitatsklinikum Bonn, Bonn

55455

University Of Minnesota Medical Center, Minneapolis

67091

Hopitaux universitaires de Strasbourg, Srasbourg

70121

Ochsner Medical Center, New Orleans

72205

University of Arkansas for Medical Sciences, Little Rock

75012

Centre Hospitalier National d'Ophtalmologie des Quinze-Vingts, Paris

75015

Hôpital Necker-Enfants Malades, Paris

77030

Baylor College of Medicine, Houston

77204

University of Texas Houston, Houston

77401

Retina Consultants of Texas, Bellaire

80131

Azienda Ospedaliera Univ.- Università Degli studi della Campania - Luigi Vanvitelli, Napoli

90033

University of Southern California, Los Angeles

94143

UCSF, San Francisco

97239

Oregon Health And Science University, Portland

100045

Beijing Children's Hospital, Capital Medical University, Beijing

100730

Beijing Tongren Hospital CMU, Beijing

Peking Union Medical College Hospital, Beijing

200031

Eye and ENT Hospital of Fudan University, Shanghai

200080

Shanghai General Hospital, Shanghai

200092

Xin Hua Hospital Affiliated to Shanghai Jiao Tong University School of Medicine, Shanghai

200336

Shanghai Aier Eye Hospital, Shanghai

510060

Sun YatSen University, Zhongshan Ophthalmic Center, Guangzhou

6423906

Tel Aviv Sourasky Medical Center, Tel Aviv

212051832

John Hopkins Hospital, Baltimore

A-1090

Medizinische Universitaet Wien, Vienna

30150-270

INRET Clínica e Centro de Pesquisa, Belo Horizonte

05406-900

On Oftalmologia LTDA, Pinheiros

01427-002

Clinica Oftalmologica Sao Lucas, São Paulo

04023-061

Instituto De Genetica Ocular, São Paulo

M4N 3M5

Sunnybrook Health Sciences Center, Toronto

00100

Helsingin Yliopistollinen Keskussairaala, Helsinki

F44093

CHU Nantes, Nantes

00168

Policlinico Universitario Agostino Gemelli, Roma

00198

IRCCS Fondazione G.B. Bietti per lo Studio e la Ricerca in Oftalmologia ONLUS, Roma

812-8582

Kyushu University Hospital, Fukuoka

152 8902

National Hospital Organization Tokyo Medical Center, Meguro-ku

466-8560

Nagoya University Hospital, Nagoya

514 8507

Mie University Hospital, Tsu

03722

Severance Hospital, Seoul

06351

Samsung Medical Center, Seoul

08907

Hosp. Univ. de Bellvitge, Barcelona

08950

Hosp. Sant Joan de Deu, Barcelona

CF244LU

University Hospital Wales, Cardiff

HU32JZ

Hull University Teaching Hospitals NHS Trust, Hull

LS9 7TF

Leeds Teaching Hospitals NHS Trust, Leeds

L7 8XP

Royal Liverpool University Hospital, Liverpool

SO166YD

University Hospital Southampton NHS Foundation Trust, Southampton

SR29HP

Sunderland Eye Infirmary, Sunderland

All Listed Sponsors
lead

Janssen Research & Development, LLC

INDUSTRY

NCT05957276 - Global Patient Registry of Inherited Retinal Diseases | Biotech Hunter | Biotech Hunter