189
Participants
Start Date
August 6, 2020
Primary Completion Date
March 17, 2023
Study Completion Date
March 17, 2023
PD_Pal intervention
The PD\_Pal intervention will be delivered by a nurse that is specifically trained to deliver the PD\_Pal intervention, i.e. the PD\_Pal nurse. In the PD\_Pal intervention, the patient, family caregiver and PD\_Pal nurse complete four steps wherein they discuss and compose a: 1) Individual care plan; 2) Proactive care plan; 3) Quality of life and end-of-life plan and; 4) Coordination and revision plan. Together these steps lead to the Parkinson Support Plan. To facilitate patients in taking these steps, all patients receive a Parkinson Support Plan workbook. This workbook consists of information and questions aligned with the four steps. Patients can utilize this workbook before, during, or after the conversations with the PD\_Pal nurse.
Paracelsus Medical University, Salzburg
Estonian Movement Disorders Society, Tartu
Philipps University Marburg Medical Center, Marburg
University of Ioannina, Ioannina
University of Padova, Padua
Skane University Hospital, Lund
University College, London, London
Collaborators (1)
University of Padova
OTHER
University of Ioannina
OTHER
University College, London
OTHER
Estonian Movement Disorders Society
UNKNOWN
Paracelsus Medical University
OTHER
Philipps University Marburg
OTHER
Skane University Hospital
OTHER
Mediolanum Cardio Research
OTHER
Radboud University Medical Center
OTHER