826
Participants
Start Date
June 29, 2023
Primary Completion Date
August 29, 2024
Study Completion Date
August 29, 2024
Ambiguity
The intervention is a novel communication approach to communicate ambiguity related to the potential risks and benefits associated with clinical decision making for parents and caregivers of children with medical complexity.
Complexity
The intervention is a novel communication approach to communicate complexity related to the potential risks and benefits associated with clinical decision making for parents and caregivers of children with medical complexity.
Normalizing language
The intervention is a novel communication approach to normalize and explain the inherent uncertainty faced by parents of children with medical complexity during clinical decision making.
Narrative
Parent and caregiver narratives about their decision making experiences for the care of their child with medical complexity.
University of Utah, Salt Lake City
Children's Hospital Los Angeles, Los Angeles
Children's Hospital Los Angeles
OTHER
University of Utah
OTHER