New Clinical Outcome Measures to Remotely Evaluate Patients With FacioScapuloHumeral Muscular Dystrophy

NAActive, not recruitingINTERVENTIONAL

Enrollment

Participants

Timeline

Start Date

May 23, 2023

Primary Completion Date

March 31, 2025

Study Completion Date

March 31, 2025

Conditions

Type 1 Facioscapulohumeral Muscular Dystrophy

Interventions

OTHER

Remote monitoring program

Remote program is composed of some questionnaires and physical exercises performed at home and at hospital (depending on the concerned visit)

Trial Locations (3)

CHRU de Lille, Lille

Institut de Myologie, Paris

CHU de Nice, Nice

All Listed Sponsors

lead

Centre Hospitalier Universitaire de Nice

OTHER