Effects of Long Term Ventilation Support on the Quality of Life of ALS Patients and Their Families

NARecruitingINTERVENTIONAL
Enrollment

200

Participants

Timeline

Start Date

April 21, 2023

Primary Completion Date

August 21, 2032

Study Completion Date

August 21, 2032

Conditions
Amyotrophic Lateral SclerosisMotor Neuron DiseaseNervous System DiseasesSpinal Cord DiseasesNeurodegenerative DiseasesTDP-43 Proteinopathies
Interventions
DEVICE

Long term mechanical ventilation support

Patients that choose life prolonging treatment with long term mechanical ventilation support

DEVICE

No long term mechanical ventilation support

Patients that decline life prolonging treatment with long term mechanical ventilation support

Trial Locations (9)

1714

NOT_YET_RECRUITING

Østfold Hospital Kalnes, Sarpsborg

8005

RECRUITING

Nordland Hospital Bodø, Bodø

Unknown

RECRUITING

Sørlandet Hospital Trust, Kristiansand

RECRUITING

Haukeland University Hospital, Bergen

RECRUITING

Akershus University Hospital, Lørenskog

RECRUITING

Oslo University Hospital, Oslo

RECRUITING

Stavanger University Hospital, Stavanger

RECRUITING

Universitetssykehuset Nord-Norge, Tromsø

RECRUITING

St. Olavs Hospital, Trondheim

All Listed Sponsors
collaborator

Oslo University Hospital

OTHER

collaborator

University Hospital, Akershus

OTHER

collaborator

Helse Stavanger HF

OTHER_GOV

collaborator

University Hospital of North Norway

OTHER

collaborator

St. Olavs Hospital

OTHER

collaborator

Nordland Hospital, Bodø

UNKNOWN

collaborator

Hospital of Southern Norway Kristiansand

UNKNOWN

collaborator

Østfold Hospital Kalnes

UNKNOWN

lead

Haukeland University Hospital

OTHER

NCT05744310 - Effects of Long Term Ventilation Support on the Quality of Life of ALS Patients and Their Families | Biotech Hunter | Biotech Hunter