National Evaluation of Patients With PIK3CA-Related Overgrowth Spectrum (PROS)

RecruitingOBSERVATIONAL
Enrollment

2,500

Participants

Timeline

Start Date

February 21, 2023

Primary Completion Date

December 31, 2027

Study Completion Date

December 31, 2028

Conditions
PIK3CA-related Overgrowth SpectrumCLOVES SyndromeKlippel Trenaunay SyndromeMegalencephalyMCAPMacrodactylyVascular MalformationsLymphatic MalformationVenous Malformation
Interventions
OTHER

national registry

The investigators will collect demographic, clinical, biological and imaging characteristics of patients with PROS.

Trial Locations (1)

75015

RECRUITING

Translational medicine and Targeted therapies unit, Hôpital Necker Enfants Malades, Paris

All Listed Sponsors
lead

Institut National de la Santé Et de la Recherche Médicale, France

OTHER_GOV