International CDKL5 Clinical Research Network

RecruitingOBSERVATIONAL
Enrollment

1,000

Participants

Timeline

Start Date

February 15, 2021

Primary Completion Date

February 15, 2026

Study Completion Date

February 15, 2027

Conditions
CDKL5CDKL5 Deficiency DisorderCDD
Interventions
OTHER

No intervention.

No intervention administered as part of this study; observational only.

Trial Locations (9)

6009

RECRUITING

Telethon Kids Institute/Perth Children's Hospital, Perth

10016

RECRUITING

NYU Langone Health, New York

19104

RECRUITING

Children's Hospital of Philadelphia, Philadelphia

44195

RECRUITING

Cleveland Clinic Foundation, Cleveland

63110

RECRUITING

Washington University in St. Louis/St. Louis Children's Hospital, St Louis

77030

RECRUITING

Baylor College of Medicine/ Texas Children's Hospital, Houston

80045

RECRUITING

University of Colorado Denver/Children's Hospital Colorado, Aurora

90095

RECRUITING

University of California Los Angeles/UCLA Mattel Children's Hospital, Los Angeles

02115

RECRUITING

Harvard Medical School/Boston Children's Hospital, Boston

All Listed Sponsors
collaborator

National Institute of Neurological Disorders and Stroke (NINDS)

NIH

collaborator

National Institutes of Health (NIH)

NIH

collaborator

International Foundation for CDKL5 Research

UNKNOWN

lead

University of Colorado, Denver

OTHER