NCT05522374 - TIRCON International NBIA Registry | Biotech Hunter

Enrollment

2,000

Participants

Timeline

Start Date

June 14, 2012

Primary Completion Date

December 31, 2040

Study Completion Date

December 31, 2040

Conditions

Neurodegeneration With Brain Iron Accumulation (NBIA)Pantothenate Kinase-associated Neurodegeneration (PKAN)Beta-Propeller Protein-Associated Neurodegeneration (BPAN)Mitochondrial Membrane Protein Associated Neurodegeneration (MPAN)Fatty Acid Hydroxylase-associated Neurodegeneration (FAHN)Kufor Rakeb SyndromeNeuroferritinopathyAceruloplasminemiaWoodhouse Sakati SyndromeCOASY Protein-associated Neurodegeneration (CoPAN)PLA2G6-Associated Neurodegeneration (PLAN)

Trial Locations (9)

20133

RECRUITING

The Foundation of the Carlo Besta Neurological Institute, IRCCS, Milan

80336

RECRUITING

LMU Klinikum, Friedrich-Baur-Institute, Munich

K1H 8L1

RECRUITING

Children's Hospital of Eastern Ontario, Division of Neurology, Department of Pediatrics, Ottawa

120 00

RECRUITING

Charles University, Department of neurology, Prague

9700 RB

RECRUITING

University medical Center Groningen (UMCG) Department of Neurology AB 51, Groningen

04-730

RECRUITING

The Childrens Memorial Health Institute, Warsaw

Unknown

RECRUITING

University of Belgrade, Department of Movement Disorders and Degenerative Brain Diseases, Belgrade

08035

ACTIVE_NOT_RECRUITING

Hospital Vall d'Hebron - Institut de Recerca (VHIR), Pediatric Neurology, Movement Disorders, Barcelona

08950

ACTIVE_NOT_RECRUITING

Hospital Sant Joan de Déu, Universitat de Barcelona, Servei de Neurología, Barcelona

All Listed Sponsors

collaborator

Seventh Framework Programme

OTHER

collaborator

NBIA Alliance

UNKNOWN

lead

LMU Klinikum

OTHER