Evaluation of Transition With a Heart, a Transition Program for Adolescents With Congenital Heart Disease and Parents

NACompletedINTERVENTIONAL
Enrollment

81

Participants

Timeline

Start Date

November 5, 2015

Primary Completion Date

December 1, 2021

Study Completion Date

December 1, 2022

Conditions
Congenital Heart Disease in AdolescenceTransitional Care
Interventions
OTHER

Transition With a Heart (TWAH)

TWAH is a transition program, especially developed for adolescents with CHD and their parents. TWAH is starting at the age of 12 years and continuing after transfer. The most vital core components include a general and individualized flowchart, adolescent-centred communication, a joined transfer consultation and an appointed transition coordinator. TWAH focuses on promoting disease knowledge, autonomy and skills development of adolescents with CHD. Interventions encompass the use of a communication-paper, autonomously talking to professionals, individualized education and skills development plan. Details can be found in De Hosson et al, 2020 (1).

Trial Locations (1)

9000

Ghent University Hospital, Ghent

All Listed Sponsors
collaborator

Universiteit Antwerpen

OTHER

lead

University Hospital, Ghent

OTHER

NCT05479630 - Evaluation of Transition With a Heart, a Transition Program for Adolescents With Congenital Heart Disease and Parents | Biotech Hunter | Biotech Hunter