81
Participants
Start Date
November 5, 2015
Primary Completion Date
December 1, 2021
Study Completion Date
December 1, 2022
Transition With a Heart (TWAH)
TWAH is a transition program, especially developed for adolescents with CHD and their parents. TWAH is starting at the age of 12 years and continuing after transfer. The most vital core components include a general and individualized flowchart, adolescent-centred communication, a joined transfer consultation and an appointed transition coordinator. TWAH focuses on promoting disease knowledge, autonomy and skills development of adolescents with CHD. Interventions encompass the use of a communication-paper, autonomously talking to professionals, individualized education and skills development plan. Details can be found in De Hosson et al, 2020 (1).
Ghent University Hospital, Ghent
Universiteit Antwerpen
OTHER
University Hospital, Ghent
OTHER