Information Support Using an Online Learning Platform for Malaysian Pediatric Leukemia and Lymphoma Parents

NACompletedINTERVENTIONAL
Enrollment

51

Participants

Timeline

Start Date

July 15, 2022

Primary Completion Date

March 31, 2023

Study Completion Date

March 31, 2023

Conditions
Pediatric Acute Myeloid LeukemiaPediatric Acute Lymphoid LeukemiaPediatric Non-Hodgkin LymphomaPediatric Hodgkin Lymphoma
Interventions
OTHER

eHOPE

"e-Haematological Oncology Parents Education (eHOPE) consists of caregiving information for parents of children with leukaemia and lymphoma, presented in multimedia format through an online learning platform. The contents are developed in Malay language, encompassing basic information on disease and treatment, medical caregiving, emotional caregiving, appraising information, communication and self-care. Parents will be able to access multimedia information designed to support them in the care of their sick child. There are 4 self-paced activities in eHOPE with the following objectives:~1. Parents should be able to outline key tasks related to care for their child at home.~2. Parents should be able to outline strategies to initiate discussions with their child's healthcare providers.~3. Parents should be able to appraise reliability of information sources.~4. Parents should be able to identify coping strategies that they can use when faced with stressful situations."

OTHER

Usual care

Face-to-face verbal discussions and caregiver training will be provided as deemed necessary by the clinicians.

Trial Locations (2)

50300

Hospital Tunku Azizah, Kuala Lumpur

56000

Hospital Tunku Ampuan Besar Tuanku Aishah Rohani Hospital Pakar Kanak-kanak UKM (HPKK), Kuala Lumpur

All Listed Sponsors
collaborator

Universiti Putra Malaysia

OTHER

collaborator

Ministry of Health, Malaysia

OTHER_GOV

lead

Universiti Kebangsaan Malaysia Medical Centre

OTHER