51
Participants
Start Date
July 15, 2022
Primary Completion Date
March 31, 2023
Study Completion Date
March 31, 2023
eHOPE
"e-Haematological Oncology Parents Education (eHOPE) consists of caregiving information for parents of children with leukaemia and lymphoma, presented in multimedia format through an online learning platform. The contents are developed in Malay language, encompassing basic information on disease and treatment, medical caregiving, emotional caregiving, appraising information, communication and self-care. Parents will be able to access multimedia information designed to support them in the care of their sick child. There are 4 self-paced activities in eHOPE with the following objectives:~1. Parents should be able to outline key tasks related to care for their child at home.~2. Parents should be able to outline strategies to initiate discussions with their child's healthcare providers.~3. Parents should be able to appraise reliability of information sources.~4. Parents should be able to identify coping strategies that they can use when faced with stressful situations."
Usual care
Face-to-face verbal discussions and caregiver training will be provided as deemed necessary by the clinicians.
Hospital Tunku Azizah, Kuala Lumpur
Hospital Tunku Ampuan Besar Tuanku Aishah Rohani Hospital Pakar Kanak-kanak UKM (HPKK), Kuala Lumpur
Universiti Putra Malaysia
OTHER
Ministry of Health, Malaysia
OTHER_GOV
Universiti Kebangsaan Malaysia Medical Centre
OTHER