A Multilevel Intervention to Improve Adherence to Childhood Cancer Survivorship

NAActive, not recruitingINTERVENTIONAL
Enrollment

240

Participants

Timeline

Start Date

January 1, 2023

Primary Completion Date

February 28, 2026

Study Completion Date

August 31, 2026

Conditions
Childhood CancerSurvivorshipHealth Care UtilizationHealth Knowledge, Attitudes, PracticeAdherence, Patient
Interventions
BEHAVIORAL

Multi-level Intervention of shared model of survivorship care

1\) Patient survivorship education via telehealth with the cancer center- The research registered nurse (RN) will discuss the contents of the survivorship care plan and coordination between the cancer center and PCP clinic. 2) Ongoing patient-tailored education program by MyChart within the EHR patient portal- Patients will be asked to select survivorship topics of interest from a panel (e.g. school issues, fertility, fatigue, physical activity, single kidney health, emotions/coping) that will then be sent over 1 year. 3) Structured interactive phone communication between the research RN at the cancer center and community PCP clinic- The discussion will explain the patient's cancer history, tumor recurrence monitoring schedule, individualized risk of late effects and surveillance schedule, psychosocial challenges, health behaviors, and coordination between the cancer center and PCP clinic. 4) In-person visit with the PCP clinic for survivorship care.

OTHER

Comparison Group

Participants will be contacted by study staff at their cancer center to schedule an in-person visit at the survivorship clinic that will include a comprehensive history focused on cancer-related medical and psychosocial issues, physical examination, ordering of recommended surveillance for late effects, and delivery of hard copy of their survivorship care plan.

Trial Locations (4)

27514

University of North Carolina Children's Hospital, Chapel Hill

80045

Children's Hospital Colorado, Denver

90806

MemorialCare Miller Children's & Women's Hospital Long Beach, Long Beach

07601

Hackensack University Medical Center, Hackensack

All Listed Sponsors
collaborator

University of North Carolina, Chapel Hill

OTHER

collaborator

University of Colorado, Denver

OTHER

collaborator

Hackensack Meridian Health

OTHER

collaborator

NYU Langone Health

OTHER

collaborator

Seattle Children's Hospital

OTHER

lead

Georgetown University

OTHER