NCT05448326View on ClinicalTrials.gov

The Diagnostic Observatory: Combating Diagnostic Wandering and Impasse Within the AnDDI-Rares Network

RecruitingOBSERVATIONAL
Enrollment

1,280

Participants

Timeline

Start Date

March 28, 2022

Primary Completion Date

March 31, 2027

Study Completion Date

March 31, 2027

Conditions
Developmental Abnormality
Interventions
OTHER

Questionnaire to assess expectations of a diagnosis

Duration 45 minutes

OTHER

Questionnaire to assess understanding of previously reported results and expectations of a diagnosis

Duration 30 minutes

BIOLOGICAL

Blood sample +/- skin biopsy

8 ml of blood biopsy: size 3 to 5 mm

Trial Locations (1)

21000

RECRUITING

Chu Dijon Bourogne, Dijon

All Listed Sponsors
lead

Centre Hospitalier Universitaire Dijon

OTHER