Compassionate Communication and Advance Care Planning to Improve End of Life Care in Treatment of Hematological Disease (ACT)

NARecruitingINTERVENTIONAL
Enrollment

920

Participants

Timeline

Start Date

August 1, 2022

Primary Completion Date

October 1, 2026

Study Completion Date

October 1, 2026

Conditions
Multiple MyelomaMyelodysplastic SyndromesLymphomaAcute Myeloid Leukemia
Interventions
BEHAVIORAL

Advance consultation concerning your life and treatment (ACT )

The ACT intervention consists of: an 8 h training day for clinicians including clinical materials such as a conversation aid and conversations guide. 6o minutes ACT-intervention sessions in daily clinic. the patients and caregivers will receive preparatory material prior for the ACT-intervention sessions, and a 30 min follow-up telephone call from the nurse within one week after the ACT-session. Clinicians will receive five sessions of followup supervision within the 24 months of intervention. The 60 min ACT-intervention session is an interdisciplinary conversation with nurse, physician, patient, and caregiver discussing issues of importance of patient and caregiver. The issues are based on the preparatory material focusing on information level and prognosis, patient's and caregiver's values, hopes, fears and worries regarding the future care with progressive disease.

Trial Locations (7)

4000

RECRUITING

Sjællands universitetshospital Roskilde, Roskilde

5000

RECRUITING

Odense Universitetshospital, Odense

6700

RECRUITING

Sydvestjysk sygehus - Esbjerg, Esbjerg

7100

RECRUITING

Lillebælt syge - Vejle Sygehus, Vejle

7400

RECRUITING

Regionshospitalet Gødstrup, Herning

8200

RECRUITING

Aarhus Universitetshospital, Aarhus

9100

RECRUITING

Aalborg Universitetshospital, Aalborg

All Listed Sponsors
collaborator

Rigshospitalet, Denmark

OTHER

collaborator

Zealand University Hospital

OTHER

collaborator

Odense University Hospital

OTHER

collaborator

Vejle Hospital

OTHER

collaborator

Esbjerg Hospital - University Hospital of Southern Denmark

OTHER

collaborator

Gødstrup Hospital

OTHER

collaborator

Aarhus University Hospital

OTHER

collaborator

Aalborg University Hospital

OTHER

lead

Christoffer Johansen

OTHER