Rett Syndrome Registry

RecruitingOBSERVATIONAL
Enrollment

3,000

Participants

Timeline

Start Date

August 2, 2022

Primary Completion Date

July 31, 2027

Study Completion Date

July 31, 2028

Conditions
Rett SyndromeRett Syndrome, AtypicalGenetic DiseaseGenetic Diseases, X-LinkedIntellectual DisabilityNeurobehavioral ManifestationsNeurologic ManifestationsNeurologic DisorderNeurodevelopmental DisordersNervous System Diseases
Trial Locations (18)

10467

RECRUITING

The Children's Hospital at Montefiore, The Bronx

19104

RECRUITING

Children's Hospital of Philadelphia, Philadelphia

21205

RECRUITING

Kennedy Krieger Institute, Baltimore

27517

NOT_YET_RECRUITING

The University of North Carolina at Chapel Hill, Chapel Hill

29646

RECRUITING

Greenwood Genetic Center, Greenwood

35233

RECRUITING

University of Alabama, Birmingham

37232

RECRUITING

Vanderbilt Kennedy Center, Nashville

43205

NOT_YET_RECRUITING

Nationwide Children's Hospital, Columbus

45229

NOT_YET_RECRUITING

Cincinnati Children's Hospital Medical Center, Cincinnati

55101

RECRUITING

Gillette Children's Specialty Healthcare, Saint Paul

60612

RECRUITING

Rush University Medical Center, Chicago

63110

RECRUITING

Washington University in St. Louis, St Louis

75207

RECRUITING

Children's Health, Dallas

77030

RECRUITING

Texas Children's Hospital, Houston

80045

RECRUITING

Children's Hospital Colorado, Denver

90027

NOT_YET_RECRUITING

Children's Hospital Los Angeles, Los Angeles

94609

RECRUITING

UCSF Benioff Children's Hospital, Oakland

02115

RECRUITING

Boston Children's Hospital, Boston

All Listed Sponsors
collaborator

Boston Children's Hospital

OTHER

collaborator

Children's Health UTSW

UNKNOWN

collaborator

Children's Hospital Colorado

OTHER

collaborator

Children's Hospital of Philadelphia

OTHER

collaborator

Gillette Children's Specialty Healthcare

OTHER

collaborator

Greenwood Genetic Center

OTHER

collaborator

Hugo W. Moser Research Institute at Kennedy Krieger, Inc.

OTHER

collaborator

Montefiore Medical Center

OTHER

collaborator

Rush University

OTHER

collaborator

St. Louis Children's Hospital

OTHER

collaborator

Baylor College of Medicine

OTHER

collaborator

University of Alabama at Birmingham

OTHER

collaborator

UCSF Benioff Children's Hospital Oakland

OTHER

collaborator

Vanderbilt University Medical Center

OTHER

collaborator

Hive Networks

UNKNOWN

lead

International Rett Syndrome Foundation

OTHER