NCT05366465View on ClinicalTrials.gov

Quality of Life and Participation of the Adult with Spinal Muscular Atrophy in France

CompletedOBSERVATIONAL
Enrollment

149

Participants

Timeline

Start Date

October 19, 2022

Primary Completion Date

February 17, 2024

Study Completion Date

February 17, 2024

Conditions
Spinal Muscular Atrophy
Interventions
OTHER

SMA adult patients

An online questionnaire aimed at collecting demographic and social data, and data concerning activity limitations, participation and quality of life of SMA patients from validated scales : QOLNMD, Rosenberg.

Trial Locations (2)

69500

Service L'Escale - Médecine Physique et de Réadaptation Pédiatrique Groupement Hospitalier Est des Hospices Civils de Lyon, Bron

VUILLEROT Carole, Bron

All Listed Sponsors
lead

Hospices Civils de Lyon

OTHER