NCT05248503View on ClinicalTrials.gov

Impact of Complex Care Training of Hereditary Epidermolysis Bullosa on Caregiver Burden (FIREB)

Active, not recruitingOBSERVATIONAL
Enrollment

19

Participants

Timeline

Start Date

June 1, 2023

Primary Completion Date

November 15, 2024

Study Completion Date

May 31, 2025

Conditions
Hereditary Epidermolysis Bullosa
Interventions
BEHAVIORAL

Complex Care Training of Hereditary Epidermolysis Bullosa

Training in the care of epidermolysis bullosa by combining theoretical content on the disease and practical workshops.

Trial Locations (1)

75015

Assistance Publique - Hôpitaux de Paris, Paris

All Listed Sponsors
lead

Assistance Publique - Hôpitaux de Paris

OTHER