Swiss Rare Disease Registry (SRDR)

RecruitingOBSERVATIONAL
Enrollment

500,000

Participants

Timeline

Start Date

January 1, 2018

Primary Completion Date

January 31, 2071

Study Completion Date

January 31, 2071

Conditions
Rare Diseases
Trial Locations (20)

Unknown

RECRUITING

Kantonsspital Aarau, Pädiatrie, Aarau

RECRUITING

Kantonsspital Aarau, Aarau

NOT_YET_RECRUITING

Center for Rare Diseases, Basel, Basel

NOT_YET_RECRUITING

Universitäs-Kinderspital beider Basel, UKBB, Basel

NOT_YET_RECRUITING

Universitätsspital Basel, USB, Basel

RECRUITING

Centro Malattie Rare della Svizzera Italiana, Bellinzona

RECRUITING

Center for Rare Diseases, Inselspital, Bern

RECRUITING

University of Bern, Inselspital Bern, Bern

RECRUITING

Center for Rare Diseases, Geneva, Geneva

RECRUITING

Hôpitaux universitaires de Genève, HUG, Geneva

RECRUITING

Center for Rare Diseases, Lausanne, Lausanne

RECRUITING

Centre hospitalier universitaire vaudois, CHUV, Lausanne

NOT_YET_RECRUITING

Kantonsspital St. Gallen, Sankt Gallen

NOT_YET_RECRUITING

Ostschweizer Kinderspital, Sankt Gallen

NOT_YET_RECRUITING

Ostschweizer Zentrum für seltene Krankheiten, Pädiatrie, Sankt Gallen

NOT_YET_RECRUITING

Ostschweizer Zentrum für seltene Krankheiten, Sankt Gallen

NOT_YET_RECRUITING

Center for Rare Diseases, Zurich, Zurich

RECRUITING

Universitäts-Kinderspital Zürich, Kispi, Zurich

NOT_YET_RECRUITING

Universitätsklinik Balgrist, Zurich

NOT_YET_RECRUITING

Universitätsspital Zürich, USZ, Zurich

All Listed Sponsors
collaborator

Federal Office of Public Health, Switzerland

OTHER_GOV

collaborator

Universitäts-Kinderspital Zürich

UNKNOWN

collaborator

University Children's Hospital Basel

OTHER

collaborator

Insel Gruppe AG, University Hospital Bern

OTHER

collaborator

University Hospital, Zürich

OTHER

collaborator

Centre Hospitalier Universitaire Vaudois

OTHER

collaborator

University Hospital, Geneva

OTHER

collaborator

Proraris Allianz seltener Krankheiten

UNKNOWN

collaborator

Kosek National Coordination Rare Diseases Switzerland

UNKNOWN

collaborator

Orphanet Suisse

UNKNOWN

collaborator

University of Zurich

OTHER

collaborator

Kantonsspital Aarau

OTHER

collaborator

Ente Ospedaliero Cantonale, Bellinzona

OTHER

collaborator

Cantonal Hospital of St. Gallen

OTHER

collaborator

Ostschweizer Kinderspital

OTHER

collaborator

University Hospital, Basel, Switzerland

OTHER

collaborator

Balgrist University Hospital

OTHER

collaborator

Centro Malattie Rare della Svizzera Italiana

UNKNOWN

lead

University of Bern

OTHER