Effectiveness of Upper Extremity Rehabilitation in pwFSHD (Patient With Facioscapulohumeral Dystrophia)

CompletedOBSERVATIONAL
Enrollment

36

Participants

Timeline

Start Date

February 22, 2022

Primary Completion Date

April 23, 2022

Study Completion Date

June 10, 2022

Conditions
Facioscapulohumeral Muscular Dystrophy
Interventions
OTHER

upper extremity rehabilitation program

Patients with FSHD who have undergone and have not undergone surgery will be given activity training by the same physiotherapist after they agree to participate in the study. Both groups will be given the same exercises, the same number of repetitions and the same frequency. A two-phase exercise protocol will be established and progression will be performed after 4 weeks. The exercises will be based on the upper extremity and will include various types of exercises and the primary affected November muscles in the upper extremity. It is planned that the exercises will be accompanied by a physiotherapist 2 days a week, with a total of 16 sessions for 8 weeks. It is planned that there will be a total of 8-10 exercises in 10 repetitions in the exercise program. The total length of the exercise session will be 30 minutes. It is planned that the same physiotherapist will be one-on-one with the patient from the beginning to the end of the exercises.

DIAGNOSTIC_TEST

Results of assessment

The total follow-up period of participants included in intervention programs will be 8 weeks. Evaluations will be evaluated by physiotherapist before and at the end of treatment.

Trial Locations (1)

34500

Istanbul University-Cerrahpaşa, Istanbul

All Listed Sponsors
lead

Istanbul University - Cerrahpasa

OTHER

NCT05178706 - Effectiveness of Upper Extremity Rehabilitation in pwFSHD (Patient With Facioscapulohumeral Dystrophia) | Biotech Hunter | Biotech Hunter