RFC1 Natural History Study

RecruitingOBSERVATIONAL
Enrollment

150

Participants

Timeline

Start Date

December 14, 2021

Primary Completion Date

December 31, 2024

Study Completion Date

December 31, 2025

Conditions
Ataxia
Interventions
OTHER

Clinical rating scale to measure ataxia disease severity and progression

SARA is a clinical scale developed by Schmitz-Hübsch et al which assesses a range of different impairments in cerebellar ataxia. The scale is made up of 8 items related to gait, stance, sitting, speech, finger-chase test, nose-finger test, fast alternating movements and heel-shin test.

Trial Locations (10)

1142

RECRUITING

Centre of Brain Research Neurogenetics Research Clinic, University of Auckland, Auckland

3004

RECRUITING

Department of Neuroscience, Central Clinical School, Monash University, Melbourne

23562

RECRUITING

Department of Neurology University Hospital Schleswig Holstein, Lübeck

34010

RECRUITING

Koç University Hospital, KUTTAM-NDAL, Istanbul

53127

RECRUITING

German Center for Neurodegenerative Diseases (DZNE), Bonn

56128

RECRUITING

IRCCS Fondazione Stella Maris, Pisa

67000

RECRUITING

Service de Neurologie, Hôpitaux Universitaires de Strasbourg, Strasbourg

72076

RECRUITING

Center for Neurology & Hertie-Institute for Clinical Brain Research, Dept. for Neurodegenerative Diseases, Tübingen

80131

RECRUITING

Università degli Studi di Napoli 'Federico II', c/o AOU Federico II, Napoli

04040-003

RECRUITING

Department of Neurology, Ataxia Unit, Universidade Federal de São Paulo, São Paulo

All Listed Sponsors
lead

Prof. Dr. Matthis Synofzik

OTHER