Territorial Implementation and Evaluation of a Multiple Sclerosis Expert Patient Program

NACompletedINTERVENTIONAL
Enrollment

152

Participants

Timeline

Start Date

November 1, 2021

Primary Completion Date

December 31, 2023

Study Completion Date

July 31, 2024

Conditions
Multiple SclerosisQuality of LifePatient EmpowermentPatient ActivationFatiguePeer Group
Interventions
OTHER

Multiple Sclerosis Expert Patient Program of Catalonia

It is intended to constitute 12 groups of patients (6 with relapsing and 6 for progressive MS; one of each type per unit). The study will be conducted virtually due to the current pandemic situation. Throughout 9 sessions (1 per week for 9 sessions), participants in the group will share knowledge and lived experiences on all aspects related to MS and their self-management. In each session there is a theoretical part to focus on the topic, conducted by the EP. Immediately afterwards, the EP will encourage interaction, facilitating the expression of doubts, questions or experiences about the contents. Its resolution will be sought among the group, resulting in empowerment and control over the health situation. The knowledge acquired will be based on the information provided by the EP and on the knowledge resulting from the life experiences regarding MS of all the people involved. In all sessions, a healthcare professional will act as an observer, providing help and support to the EP.

Trial Locations (6)

17007

Unitat de Neuroimmunologia i Esclerosi Múltiple, Girona

25198

Hospital Universitari Arnau de Vilanova Lleida; Institut de Recerca Biomèdica de Lleida (IRBLleida), Lleida

43005

Hospital Universitari de Tarragona Joan XXIII; Salut Sant Joan de Reus - Baix Camp; Fundació Esclerosi Múltiple - Mas Sabater, Tarragona

08916

Hospital Universitari Germans Trias i Pujol, Badalona

08035

Centre d'Esclerosi Múltiple de Catalunya (Cemcat), Vall d'Hebron Barcelona Hospital Campus, Barcelona

08036

Center for Neuroimmunology. Advanced Imaging in Neuroimmunological Diseases lab (ImaginEM). Hospital Clinic Barcelona, Barcelona

All Listed Sponsors
lead

Hospital Universitari Vall d'Hebron Research Institute

OTHER

NCT04988880 - Territorial Implementation and Evaluation of a Multiple Sclerosis Expert Patient Program | Biotech Hunter | Biotech Hunter