Overcoming Barriers to the Uptake of Cascade Screening for Lynch Syndrome: Workbook Feasibility Study

NACompletedINTERVENTIONAL
Enrollment

20

Participants

Timeline

Start Date

August 1, 2021

Primary Completion Date

May 2, 2024

Study Completion Date

May 2, 2024

Conditions
Lynch Syndrome
Interventions
BEHAVIORAL

Educational Workbook

"Let's Talk is an educational workbook on Lynch Syndrome and the benefits of cascade screening containing a series of lessons and activities on the following topics:~What is Lynch Syndrome? Why should a patient tell a patient's family members about Lynch Syndrome? Create a list of the patient's first-degree relatives at risk for inheriting Lynch Syndrome What should a patient tell family members about Lynch Syndrome? Create a script for the patient to use in discussing Lynch Syndrome with family What are common concerns the patient might hear from family members? How should the patient tell family members about Lynch Syndrome? Create a plan and goals for the patient to reach out to family members What the patient should do if conversation with family is difficult What are common terms and questions about Lynch Syndrome? How can the patient manage having Lynch Syndrome? Where can the patient find additional information about living with Lynch Syndrome?"

Trial Locations (1)

27599

University of North Carolina at Chapel Hill, Chapel Hill

All Listed Sponsors
collaborator

National Center for Advancing Translational Sciences (NCATS)

NIH

collaborator

University of North Carolina, Chapel Hill

OTHER

collaborator

North Carolina Translational and Clinical Sciences Institute

OTHER

lead

UNC Lineberger Comprehensive Cancer Center

OTHER

NCT04978350 - Overcoming Barriers to the Uptake of Cascade Screening for Lynch Syndrome: Workbook Feasibility Study | Biotech Hunter | Biotech Hunter