20
Participants
Start Date
August 1, 2021
Primary Completion Date
May 2, 2024
Study Completion Date
May 2, 2024
Educational Workbook
"Let's Talk is an educational workbook on Lynch Syndrome and the benefits of cascade screening containing a series of lessons and activities on the following topics:~What is Lynch Syndrome? Why should a patient tell a patient's family members about Lynch Syndrome? Create a list of the patient's first-degree relatives at risk for inheriting Lynch Syndrome What should a patient tell family members about Lynch Syndrome? Create a script for the patient to use in discussing Lynch Syndrome with family What are common concerns the patient might hear from family members? How should the patient tell family members about Lynch Syndrome? Create a plan and goals for the patient to reach out to family members What the patient should do if conversation with family is difficult What are common terms and questions about Lynch Syndrome? How can the patient manage having Lynch Syndrome? Where can the patient find additional information about living with Lynch Syndrome?"
University of North Carolina at Chapel Hill, Chapel Hill
National Center for Advancing Translational Sciences (NCATS)
NIH
University of North Carolina, Chapel Hill
OTHER
North Carolina Translational and Clinical Sciences Institute
OTHER
UNC Lineberger Comprehensive Cancer Center
OTHER