Quality of Life of Caregivers and Patients Suffering From Multiple System Atrophy

NACompletedINTERVENTIONAL
Enrollment

130

Participants

Timeline

Start Date

July 1, 2021

Primary Completion Date

June 26, 2024

Study Completion Date

July 17, 2025

Conditions
Multiple System Atrophy
Interventions
BEHAVIORAL

Multimodal intervention

"The intervention consists of identifying the individual needs of each caregiver and patient and identifying sources of improvement in the management of daily life, including the optimization of social support. This optimization requires the involvement of people in the environment (family, friends, neighbours) who can provide help, support of any kind, recurrent or punctual, minimizing negative family interactions and maximizing positive contributions by each in supporting and supporting the individual.~The intervention is personalized in the sense that the content of each session seeks to adapt itself to the specificities of the couple situation and its surroundings.~interviews/meetings involving a psychologist social worker."

Trial Locations (1)

33 076

CHU Bordeaux, Bordeaux

All Listed Sponsors
lead

University Hospital, Bordeaux

OTHER