22
Participants
Start Date
March 3, 2021
Primary Completion Date
December 31, 2021
Study Completion Date
December 31, 2021
ADAPT
ADAPT, is multi-modal to promote a targeted approach to individual parental bereavement experiences and is not time or geographically limited. ADAPT is based on the theoretical foundations of the Adaptive Leadership (AL) framework. Our interdisciplinary team developed a web-based, multi-modal intervention, labeled ADAPT, that incorporates varied self-management strategies including: A: Asking for assistance (option to connect with child's healthcare team); DA: Developing Adaptive ability (self-management tools: e.g. stress reduction, legacy building); P: Accessing Pertinent online resources (grief support networks/websites); and T: Tracking one's health (self-administered surveys for grief, sleep, anxiety, and depression). Parents can download ADAPT on any digital device (phones/computers) using a Quick Response (QR) bar code or weblink.
Akron Children's Hospital, Akron
Cardinal Glennon Childrens Hospital, St Louis
Palliative Care Research Cooperative Group
NETWORK
Akron Children's Hospital
OTHER
East Carolina University
OTHER