Systemic Sclerosis' Relatives Reflex

CompletedOBSERVATIONAL
Enrollment

50

Participants

Timeline

Start Date

June 23, 2021

Primary Completion Date

June 23, 2022

Study Completion Date

June 23, 2022

Conditions
Systemic SclerosisCaregivers
Interventions
OTHER

Self-administered questionnaires for relatives (caregivers=CG)

"Sociodemographic and medical information for the patient and the CG. SF36 questionnaire for the quality of life (physical, mental) of family CGs This assessment will be supplemented by specific questions relating to: physical health, emotional state, personal and leisure activities of the caregiver.~The CG's knowledge and representations of the disease : questions adapted from the Brief-IPQ disease representation questionnaire.~Questions will also focus on the caregiver's reactions to the patient's illness.~We have constructed a questionnaire to assess the main areas of aid in the context of SSc: emotional, domestic help, administrative, medical, for trave (16 items and an open question).~The CG Reaction Assessment-CRA questionnaire to assess the positive and negative dimensions of helping (24 items). It assesses five dimensions: self-esteem, financial impact, impact on health, impact on time and lack of family support.~The reason for the assistance provided."

Trial Locations (1)

75014

Rhumatology Service, Paris

All Listed Sponsors
collaborator

FSMR FAI2R

UNKNOWN

collaborator

Ministère des solidarités et de la santé

UNKNOWN

collaborator

URC-CIC Paris Descartes Necker Cochin

OTHER

lead

Assistance Publique - Hôpitaux de Paris

OTHER